NF2 Stories

We would like to hear your NF2 Journey, please send your text and photo by email to Gil .

Story of the month: Sky

Watch these four amazing young girls, sharing their pain and struggle.

A.J.

A.J., now 7, was diagnosed at the age age of 6 ...

Alan Abreu

My name is Alan and I was diagnosed with NF2 in 2008 when I was ...

Amelia & Pete Nobis

My 11-year-old daughter, Amelia, loves school, reading, writing, soccer, basketball, and playing with her little ...

Andrea

Donate in honour of Andrea Andrea Pelzer is an active, little dancer who loves both ...

Ashlynn

Donate in honour of Ashlynn My name is Ashlynn I am 13 years old and ...

Becky

Donate in honour of Becky (Donations go to the Rebecca Grasso fund created by her parents ...

Billie

My name is Billie, I am from Australia and I was diagnosed with NF2 in ...

Carli

Carli Sell
Age now: 26 (27 on June 8th)
Age of diagnosis: 13 This photo ...

Cathy Baglin UK

Donate in honour of Cathy’s Grandson My grandson, came home after an end-of-term exam and ...

Dave Schweder

As I sat outside my hotel on a nice cool morning at Mayo Clinic drinking ...

Deborah

Hi my name is Deborah, I’m Originally from England, and I’ve lived in Scotland with ...

Emily

Donate in honour of Emily “With NF2 things can change in a blink of ...

Erika

Erika was diagnosed with NF2 at the young age of 5 after having cataracts surgery ...

Fabian

My name is Fabian, I am 33 years old and i live in Augsburg, Germany.
...

Frederik Suter

My name is Frederik Suter, one more year and then my life will be 17 ...

Friedrich

***German version below*** My name is Friedrich from Germany, when I was 10 years old, ...

Hermienke De Kock

I was officially diagnosed twenty years ago. My dad was diagnosed in 1987 and incapacitated by ...

Ida

My daughter was diagnosed with NF2 through a genetic test when she was 14 month ...

Jo Ward

My name is Jo Ward, I was diagnosed in Sept 1999, aged 29. I still ...

Jodi

Donate in honour of Jodi The long and winding road of living with NF2 is ...

Karen

Donate in honour of Karen Karen is 11 years old. She was born in Mountain View ...

Keisha

The life of Keisha Petrus can be summed up as a ...

Krizelle

Donate in honour of Krizelle Krizelle was a 15-year old Filipino high school junior with ...

Lanita

Donate in Memory of Lanita Sunrise 04-18-1974 Sunset 10-11-2020 In Memory of Lanita Dawn McGee ...

Laurel

Donate in honour of Laurel Laurel is a bright, creative, and vibrant 11 year old ...

Lyren Lenore Grate

Donate in memory of Lyren “We die. That may be the meaning of life. But ...

Mallory

Mallory was diagnosed with NF2 at age 25 when MRI results showed a vestibular schwannoma ...

Margaret

Margaret will turn 58 in December 2018. Hers has been a life of soaring triumphs ...

Markus Schneider

Our chid was diagnosed with a rare disorder in 2014, NF2. We need a cure ...

Megan

Donate in honour of Megan Before June 24th, 2018, I was a fairly normal ...

Miyuki Tanabe

I am currently 62 years old. Back when I was 28 years old (beginning of ...

Nissa

Donate in honour of Nissa My name is Nissa and I was 22 when ...

Nolan

Donate in honour of Nolan Nolan lives with his parents in Willis, MI. He ...

Parker

Donate in honour of Parker We received Parker’s diagnosis in 2018 at the age of ...

Pujitha

Hi! My name is Pujitha, and I’m from India- but I’ve lived in Michigan for ...

Rachael

The following is the story of Rachael Morris, who died fighting NF2 at the age of ...

Simon

Donate in honour of Simon My name is Simon, I am 25 years old and ...

Sky

Donate in honor of Sky Full of life, laughter, and brilliant are a few ways ...

Terri Rausch

My name is Terri Rausch. In 2007 (at the age of 40ish) I was diagnosed with ...

The Goddard Family

Donate in honour of Goddard Living in Surrey in the UK, Scott, Olivia and Zac ...

Tucker

Tucky is an adventurous little boy. He’s super cute and has a BIG personality, ...

Vanessa

Donate in honour of Vanessa HOPE is a gift that you share with others. And ...

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