NF2 Stories

We would like to hear your NF2 Journey, please send your text and photo by email to Gil.

• Story of the month: Sky

• Watch these four amazing young girls, sharing their pain and struggle.

A.J.

A.J., now 7, was diagnosed at the age age of 6 ...
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Alan Abreu

My name is Alan and I was diagnosed with NF2 in 2008 when I was ...
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Amelia & Pete Nobis

Amelia Nobis is 8 years old, and a third grader in upstate New York, who ...
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Andrea

Donate in honour of Andrea Andrea Pelzer is an active, little dancer who loves both ...
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Ashlynn

Donate in honour of Ashlynn My name is Ashlynn I am 13 years old and ...
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Becky

Donate in honour of Becky (Donations go to the Rebecca Grasso fund  created by her parents ...
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Billie

My name is Billie, I am from Australia and I was diagnosed with NF2 in ...
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Carli

Carli Sell
Age now: 26 (27 on June 8th)
Age of diagnosis: 13 This photo ...
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Cathy Baglin UK

Donate in honour of Cathy’s Grandson My grandson, came home after an end-of-term exam and ...
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Dave Schweder

As I sat outside my hotel on a nice cool morning at Mayo Clinic drinking ...
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Deborah

Hi my name is Deborah, I’m Originally from England, and I’ve lived in Scotland with ...
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Emily

Donate in honour of Emily  “With NF2 things can change in a blink of ...
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Erika

Erika was diagnosed with NF2 at the young age of 5 after having cataracts surgery ...
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Fabian

My name is Fabian, I am 33 years old and i live in Augsburg, Germany.
...
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Frederik Suter

My name is Frederik Suter, one more year and then my life will be 17 ...
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Friedrich

***German version below*** My name is Friedrich from Germany, when I was 10 years old, ...
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Hermienke De Kock

I was officially diagnosed twenty years ago. My dad was diagnosed in 1987 and incapacitated by ...
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Ida

My daughter was diagnosed with NF2 through a genetic test when she was 14 month ...
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Jo Ward

My name is Jo Ward, I was diagnosed in Sept 1999, aged 29. I still ...
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Jodi

Donate in honour of Jodi The long and winding road of living with NF2 is ...
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Karen

Donate in honour of Karen Karen is 11 years old. She was born in Mountain View ...
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Keisha

The life of Keisha Petrus can be summed up as a ...
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Krizelle

Donate in honour of Krizelle Krizelle was a 15-year old Filipino high school junior with ...
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Lanita

Donate in Memory of Lanita Sunrise 04-18-1974  Sunset  10-11-2020 In Memory of Lanita Dawn McGee ...
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Laurel

Donate in honour of Laurel Laurel is a bright, creative, and vibrant 11 year old ...
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Lyren Lenore Grate

Donate in memory of Lyren “We die. That may be the meaning of life. But ...
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Mallory

Mallory was diagnosed with NF2 at age 25 when MRI results showed a vestibular schwannoma ...
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Margaret

Margaret will turn 58 in December 2018.  Hers has been a life of soaring triumphs ...
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Markus Schneider

Our chid was diagnosed with a rare disorder in 2014, NF2. We need a cure ...
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Megan

  Donate in honour of Megan Before June 24th, 2018, I was a fairly normal ...
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Nissa

Donate in honour of Nissa   My name is Nissa and I was 22 when ...
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Nolan

Donate in honour of Nolan  Nolan lives with his parents in Willis, MI. He ...
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Parker

Donate in honour of Parker We received Parker’s diagnosis in 2018 at the age of ...
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Rachael

The following is the story of Rachael Morris, who died fighting NF2 at the age of ...
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Simon

Donate in honour of Simon My name is Simon, I am 25 years old and ...
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Sky

Donate in honor of Sky Full of life, laughter, and brilliant are a few ways ...
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Terri Rausch

My name is Terri Rausch.  In 2007 (at the age of 40ish) I was diagnosed with ...
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The Goddard Family

Donate in honour of Goddard Living in Surrey in the UK, Scott, Olivia and Zac ...
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Tucker

Tucky is an adventurous little boy. He’s super cute and has a BIG personality, ...
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Vanessa

Donate in honour of Vanessa HOPE is a gift that you share with others.  And ...
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