We would like to hear your NF2 Journey, please send your text and photo by email to Gil.
Watch these four amazing young girls, sharing their pain and struggle.

Alan Abreu
My name is Alan and I was diagnosed with NF2 in 2008 when I was ...

Amelia & Pete Nobis
My 11-year-old daughter, Amelia, loves school, reading, writing, soccer, basketball, and playing with her little ...

Becky
Donate in honour of Becky (Donations go to the Rebecca Grasso fund created by her parents ...

Cathy Baglin UK
Donate in honour of Cathy’s Grandson My grandson, came home after an end-of-term exam and ...

Dave Schweder
As I sat outside my hotel on a nice cool morning at Mayo Clinic drinking ...

Frederik Suter
My name is Frederik Suter, one more year and then my life will be 17 ...

Hermienke De Kock
I was officially diagnosed twenty years ago. My dad was diagnosed in 1987 and incapacitated by ...

Krizelle
Donate in honour of Krizelle Krizelle was a 15-year old Filipino high school junior with ...

Lanita
Donate in Memory of Lanita Sunrise 04-18-1974 Sunset 10-11-2020 In Memory of Lanita Dawn McGee ...

Markus Schneider
Our chid was diagnosed with a rare disorder in 2014, NF2. We need a cure ...
Miyuki Tanabe
I am currently 62 years old. Back when I was 28 years old (beginning of ...

Terri Rausch
My name is Terri Rausch. In 2007 (at the age of 40ish) I was diagnosed with ...