NF2 Stories

We would like to hear your NF2 Journey, please send your text and photo by email to Gil.

A.J.

A.J., now 7, was diagnosed at the age age of 6 with NF2.  He currently ...
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Amelia & Pete Nobis

Amelia Nobis is 8 years old, and a third grader in upstate New York, who ...
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Andrea

Donate in honour of Andrea Andrea Pelzer is an active, little dancer who loves both ...
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Ashlynn

Donate in honour of Ashlynn My name is Ashlynn I am 13 years old and ...
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Billie

My name is Billie, I am from Australia and I was diagnosed with NF2 in ...
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Carli

Carli Sell Age now: 26 (27 on June 8th) Age of diagnosis: 13 This photo ...
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Deborah

Hi my name is Deborah, I’m Originally from England, and I’ve lived in Scotland with ...
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Emily

Donate in honour of Emily  “With NF2 things can change in a blink of ...
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Erika

Erika was diagnosed with NF2 at the young age of 5 after having cataracts surgery ...
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Fabian

My name is Fabian, I am 33 years old and i live in Augsburg, Germany ...
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Friedrich

***German version below*** My name is Friedrich from Germany, when I was 10 years old, ...
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Ida

My daughter was diagnosed with NF2 through a genetic test when she was 14 month ...
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Jodi

Donate in honour of Jodi The long and winding road of living with NF2 is ...
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Karen

Donate in honour of Karen Karen is 11 years old. She was born in Mountain View ...
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Keisha

The life of Keisha Petrus can be summed up as a 25-year battle with NF2 ...
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Krizelle

Donate in honour of Krizelle Krizelle was a 15-year old Filipino high school junior with ...
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Laurel

Donate in honour of Laurel Laurel is a bright, creative, and vibrant 11 year old ...
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Mallory

Mallory was diagnosed with NF2 at age 25 when MRI results showed a vestibular schwannoma ...
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Margaret

Margaret will turn 58 in December 2018.  Hers has been a life of soaring triumphs ...
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Megan

  Donate in honour of Megan Before June 24th, 2018, I was a fairly normal ...
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Nissa

Donate in honour of Nissa   My name is Nissa and I was 22 when ...
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Nolan

Donate in honour of Nolan  Nolan lives with his parents in Willis, MI. He ...
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Rachael

The following is the story of Rachael Morris, who died fighting NF2 at the age of ...
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Simon

Donate in honour of Simon My name is Simon, I am 25 years old and ...
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The Goddard Family

Donate in honour of Goddard Living in Surrey in the UK, Scott, Olivia and Zac ...
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Vanessa

Donate in honour of Vanessa HOPE is a gift that you share with others.  And ...
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