We would like to hear your NF2 Journey, please send your text and photo by email to Gil.
- Watch these four amazing young girls, sharing their pain and struggle.
A.J., now 7, was diagnosed at the age age of 6 ...Read More
My name is Alan and I was diagnosed with NF2 in 2008 when I was ...Read More
Amelia Nobis is 8 years old, and a third grader in upstate New York, who ...Read More
My name is Billie, I am from Australia and I was diagnosed with NF2 in ...Read More
Age now: 26 (27 on June 8th)
Age of diagnosis: 13 This photo ...Read More
As I sat outside my hotel on a nice cool morning at Mayo Clinic drinking ...Read More
Hi my name is Deborah, I’m Originally from England, and I’ve lived in Scotland with ...Read More
Erika was diagnosed with NF2 at the young age of 5 after having cataracts surgery ...Read More
My name is Fabian, I am 33 years old and i live in Augsburg, Germany.
My name is Frederik Suter, one more year and then my life will be 17 ...Read More
***German version below*** My name is Friedrich from Germany, when I was 10 years old, ...Read More
I was officially diagnosed twenty years ago. My dad was diagnosed in 1987 and incapacitated by ...Read More
My daughter was diagnosed with NF2 through a genetic test when she was 14 month ...Read More
My name is Jo Ward, I was diagnosed in Sept 1999, aged 29. I still ...Read More
The life of Keisha Petrus can be summed up as a ...Read More
Mallory was diagnosed with NF2 at age 25 when MRI results showed a vestibular schwannoma ...Read More
Margaret will turn 58 in December 2018. Hers has been a life of soaring triumphs ...Read More
Our chid was diagnosed with a rare disorder in 2014, NF2. We need a cure ...Read More
The following is the story of Rachael Morris, who died fighting NF2 at the age of ...Read More
My name is Terri Rausch. In 2007 (at the age of 40ish) I was diagnosed with ...Read More
Tucky is an adventurous little boy. He’s super cute and has a BIG personality, ...Read More