- Board of Directors
- Scientific Advisory Board
- Professional Advisory Board
- Volunteer Team
- Your local Ambassadors (Please contact them!)
- Contact us
About NF2 BioSolutions:
Founded on June 1, 2018 by Nicole Henwood, M.D, and mother of A.J. with NF2. NF2 BioSolutions, actively developed since September 2018, is a 100% volunteer-run nonprofit organization dedicated to finding an effective treatment or cure for NF2 through the use of gene therapy and immunotherapy. Our core team is composed of people who have been directly affected by NF2 through personal or family experience. This connection is the motivating factor that drives us passionately forward in our search for a cure. We are always looking to add to our group of volunteers so please contact us see how you can take action.
Until recently, most rare diseases were neglected by the pharmaceutical industry. Over the past decade, government incentives and scientific advances have led to an increased interest in rare diseases. We are building on this momentum to effect change in the therapy options for NF2 patients. In addition to funding research, we aim to raise awareness of NF2 and all rare diseases.
We at NF2 BioSolutions act as patient advocates by bringing the smartest minds in various research fields together. We raise funds and direct them to researchers who we feel have strategies to bring NF2 to an end. We have two main courses of action when it comes to gene therapy for NF2. We are supporting several novel therapies approaches, hoping one or several will work and cure NF2 patients. One of the approaches is to use a viral vector to introduce a “suicide” gene into tumor cells. Once this gene is incorporated into tumor cells, it induces the cell to die, a process called apoptosis. Another approach is to introduce a new and functional copy of the NF2 gene which encodes for the protein Merlin. We are actively pursuing five different pathways.
The National Organization for Rare Disorders (NORD) is pleased to announce that NORD’s Board of Directors has approved NF2 BioSolutions to become a Platinum NORD member organization