Events and Fundraising

Donate to NF2 UK charity

NF Young Adults International Summit

The NF Young Adults Summit this year is taking place LIVE from New York on 27th and 28th August 2022, put the date in your diary if you are aged between 18 and 30 and want to join in.

Organised by Littlest Tumour foundation, Childhood Tumour Trust, NF2 BioSolutions UK & NF Patients United.

If you would like to register for this event please do so here

NF2 BioSolutions UK CEO Clare and Olivia our new Youth Ambassador will be speaking as will our trustree Prof. Gareth Evans.

This is a meeting of researchers, consultants and NF advocates that want to teach YOU how to manage your NF and plan for the future.

You can join the summit in person in New York (your own expense) or join virtually. it is open to those with NF (aged 18 to 30), their family members and carers.

We hope to see you there!

For more info please email:

Nick’s Holkham Triathlon

I am fundraising for my 70.3 Triathlon (Half Ironman) at Holkham Hall to raise money for NF2 BioSolutions UK.

On July 3rd I will attempt the Outlaw Half Holkham Triathlonwhich comprises of a refreshing 1.2 mile swim in the lake at Holkham Hall in Norfolk, a relaxing 56 mile ride around the beautiful countryside and a probably painful 13.1 mile run around the Holkham estate! I have completed triathlons in the past but have never attempted one as long as this!

Thank you for any donations that you can make,100% of the money goes to funding research for treatments and a cure for NF2.

The brilliant company I work for,Johnson Matthey, will also match the first 1000 pounds raised.

The last 10 months have been a challenging time for my family. In September 2021 we discovered that one of my sons had a large brain tumour, this was successfully removed by the amazing Neuro Surgery team at Great Ormond Street Hospital. Following surgery he had genetic testing and was diagnosed with NF2. My son has recovered well from surgery and is running around like any other 5 year old but we know that some time in the future he will have more tumours.


One off donate or monthly donate to us via card/paypal

Past Fundraising Events

Here are what some of our supporters have been up to previously to fundraise on behalf of our charity.

  • Our Youth Ambassador Olivia ran 5K every other day in February raising £1,502
  • Our inaugral Charity evening in March 2022 raised nearly £5000 through a meal, raffle, tombola and auction
  • Online Auction raised £175
  • Charlotte and Andy ran the Ultra Marathon in April 2022 raised just over £1,040
  • Kerry’s Grimbsy Wolf Run raised £924
  • Jo and Oscar’s plant and cookie sale in May 2022 raised £408
  • Cathy and Sam’s coffee and craft morning raised £1,660
  • Simon and June’s 5K Walk raised £443
  • Pete completed his Machu Picchu trek in honour of his son, Oscar, raising £7,500 (read his blog for more information and pictures)
  • Annie from the TCG Golf Club walked during lockdown raising £3,892
  • Clare ran the virtual London Marathon raising £1,530
  • Jo celebrated a big birthday raising £1,800
  • Bronze Duke of Edinburgh volunteer Dylan held various events throughout 2021 raising nearly £10000 through a Walk for NF2 event, plant sale and running a mini marathon.
  • A Zumbathon was held in July 2021 in Nuneaton raising money for 3 fabulous charities including £1,000 for NF2 Biosolutions UK & Europe
  • Erewash Valley Golf Club hosted a golf day in September 2021 and raised £1,900
  • A Virtual Balloon race raised £320
  • Andy White and his friend Mike did a Coast to Coast walk in September 2021 followed by a fundraising gig in Liverpool raising a staggering £13000
  • May 2021 saw numerous people partake in our #22challenge for NF2 Awareness month, we had swimmers, kayakers, cyclists, walkers, Circuit breakers and much more!
  • Raffle of a donated Dyson V11 vacuum cleaner raised £500

Fundraising Resources

Stronger Together Against NF2 Poster
Cakeplant labels
Collection Bucket labels
Fundraising Ideas!
Make Your Own Bunting
Blank Sponsorship Form
NBS UK A5 Flyer
I need a cure A5 Flyer
Fundraising Event Poster

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