Get Involved/Fundraising

Donate to NF2 UK charity

If you wish to send us a cheque/donation by post
please send to our registered address at:

Deian Owen, NF2 BioSolutions UK & Europe,
1 Spilman Street, Carmarthen, Wales SA31 1LE

 GET INVOLVED

The objectives of our fundraising & events is to increase awareness of NF2 and to raise funds so that we can sponsor NF2 research at the Geoffrey Jefferson Brain Research Centre, University of Manchester (you can read more about our research on the research page leading to new treatments or a cure for NF2.

Since the charity was incorporated, we have raised over £200,000

Volunteer/Ambassador

As a volunteer patient-led charity we are always in need of volunteers, you could be helping with fundraising, social media, ideas, attending events/conferences. Or perhaps you have a particular skill that could be useful to us, eg designing, networking, public speaking.  Volunteering your time is one of the many ways you can get involved, help us in our objective and continue to raise awareness of NF2. Our ambassadors connect within their community, help to fundraise and raise awareness. If you are interested, please email joanne@nf2biosolutions.org

Individual/Team Fundraising & Events

Our chosen platform is Peoples Fundraising.

Register for an account here: Sign up – Online fundraising with People’s Fundraising (peoplesfundraising.com)

You can do many different types of fundraisers on the Peoples Fundraising platform: (individual, Team, Raffles, Auctions, Events, Donation Pages, In memory donations) Check them out and create your fundraiser today!

Wall – NF2 BioSolutions UK (peoplesfundraising.com)

Looking for fundraising Inspiration? Take a look at the bottom of this page to see some past fundraising events.

Fundraising Resources

Stronger Together Against NF2 Poster
Cakeplant labels
Collection Bucket labels
Fundraising Ideas!
Make Your Own Bunting
Blank Sponsorship Form
NBS UK A5 Flyer
I need a cure A5 Flyer
Fundraising Event Poster

Companies/Corporates

There are lots of ways your company can help us and can get involved with us. Like many charities, we rely on individual donations to fund our research, We’re a very small charity and we are ENTIRELY volunteers, who are patients, family, friends, or carers of someone living with NF2. Everyone has lived experience of NF2. People with NF2 are affected by Brain Tumours, Spine Tumours, Optical Tumours, Deafness, Blindness, Seizures, vocal chord paralysis, mobility problems, chronic pain, cataracts, facial palsy … & much more!

  • Charity of the year
  • Events – You could hold an event to benefit us, (eg Golf Days, charity evenings, raffles etc)
  • Support someone who works with you who has NF2 by donating or holding a fundraiser in their honour.
  • Corporate Donations – companies benefit from this also with their tax returns
  • Staff Fundraising – get staff involved in bake sales, coffee mornings or festive/themed sponsored fun days (think Christmas Jumpers!) – lots of ideas to raise funds!

Please message or email us clare@nf2biosolutions.org or joanne@nf2biosolutions.org

Trusts & Foundations

We are grateful for the trusts and foundations who have donated grants towards our research. If we align with your mission and you would like to discuss funding our research, we would be delighted to  meet you! please email joanne@nf2biosolutions.org

You can view our trusts page here.

Legacy Giving

Giving money to charity in your Will is a great way to leave a positive legacy for the future. It can also reduce the amount of tax paid by the rest of your estate so your family can get the most out of their inheritance

By naming NF2 BioSolutions as a recipient of a planned gift from your estate, the Board of Directors of will responsibly use your gift where needed and in the most prudent fashion to aid our mission find a cure for NF2 related Schwannomatosis, whether it be sustaining our current research programs or launch major new initiatives. Please use our registered address for your Will (NF2 BioSolutions UK, 1 Spilman Street, Carmarthen, SA31 1LE)

 

Supporter – “! wanted to leave a gift in my will as NF2 has gone through generations of my family on my Mum’s side. We definitely need a cure and research needs to be done. Those with NF2, like my daughter, need more treatment choices in the future.

 

Please contact clare@nf2biosolutions.org for more information

Shopping & merchandise

Easyfundraising

Raise free funds while you shop online at 8000 retailers whoc will donate to us for free!

Sign up here : NF2 BioSolutions UK Fundraising | Easyfundraising

Merchandise

Get your hoodies, T-shirts & badges here! Look the part at your fundraising event:

NF2 BioSolutions UK & Europe (company.site)

Other Ways you can help

  • Share your story (to our website and/or blog) – helping to raise awareness
  • Write a Blog post (can be about anything)
  • Follow us on social media (fb, Insta, LinkedIn, X & Tiktok), Share, comment and like our posts.

Send blogs & stories to joanne@nf2biosolutions.org

One off donate or monthly donate to us via card/paypal

Past Fundraising Events

Here are what some of our supporters have been up to previously to fundraise on behalf of our charity.

  • Our Youth Ambassador Olivia ran 5K every other day in February raising £1,502
  • Our inaugral Charity evening in March 2022 raised nearly £5000 through a meal, raffle, tombola and auction
  • Online Auction raised £175
  • Charlotte and Andy ran the Ultra Marathon in April 2022 raised just over £1,040
  • Kerry’s Grimbsy Wolf Run raised £924
  • Jo and Oscar’s plant and cookie sale in May 2022 raised £408
  • Cathy and Sam’s coffee and craft morning raised £1,660
  • Simon and June’s 5K Walk raised £443
  • Pete completed his Machu Picchu trek in honour of his son, Oscar, raising £7,500 (read his blog for more information and pictures)
  • Annie from the TCG Golf Club walked during lockdown raising £3,892
  • Clare ran the virtual London Marathon raising £1,530
  • Jo celebrated a big birthday raising £1,800
  • Bronze Duke of Edinburgh volunteer Dylan held various events throughout 2021 raising nearly £10000 through a Walk for NF2 event, plant sale and running a mini marathon.
  • A Zumbathon was held in July 2021 in Nuneaton raising money for 3 fabulous charities including £1,000 for NF2 Biosolutions UK & Europe
  • Erewash Valley Golf Club hosted a golf day in September 2021 and raised £1,900
  • A Virtual Balloon race raised £320
  • Andy White and his friend Mike did a Coast to Coast walk in September 2021 followed by a fundraising gig in Liverpool raising a staggering £13000
  • May 2021 saw numerous people partake in our #22challenge for NF2 Awareness month, we had swimmers, kayakers, cyclists, walkers, Circuit breakers and much more!
  • Raffle of a donated Dyson V11 vacuum cleaner raised £500
  • Nicks Holkham Triathlon raised £5391
  • Lisa Higham completed the Oxford Half marathon raising £601.87
  • Thornbury Golf Club ladies captain Annie Griffin raised £944
  • Matt Taylor & continued support from CMB football club
  • Add Christmas 2022 Hamper raffle £250
  • John MacCormack and 3 other friends completed a Coast to Coast Cycle – March/April 2023 £ 5877
  • Our very own Clare ran all 26 miles of the TCS London marathon – April 2023 £2909
  • Lisa did 20k steps a day in May for NF awareness month £250
  • Geoff & Jills did a bucket list daredevil Wing Walk – July 2023 £4150
  • Oscar did a seaside 5K challenge for NF2 Awareness Day – May 2023 £ 1608
  • Nicks Trialthlon has so far raised £ 2400 with more to come in September
  • In Sept 2023 Andy, Mike and Noel completed the Pennine Way walk raising just short of £20,000
  • Big Give Christmas Challenge 2023 raised £4190

 

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