Professional Advisory Board

Onno Faber – Serial Entrepreneur

onnoOnno has been building things and solving problems for as long as he can remember. He is a serial entrepreneur, he started his first [internet] company in 1998. He studied architecture and got his degree in 2006. He is still starting things, solving problems, and developing new concepts and products. Most recently, he founded RDMD, helping rare disease patients and foundations to accelerate treatments. Born in the Netherlands, Onno was diagnosed with NF2 in 2015 at the age of 36. He currently lives in San Francisco.


Victoria West – IP Law

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Victoria is the mother of four young student athletes. Her youngest is a friend, teammate and classmate of AJ, a sweet 7 year old boy recently diagnosed with NF2. Inspired by AJ’s parents’ strength and forward momentum, she is determined to work for a happy ending for all families affected by NF2.

She is Directeur et Conseil en Propriété Intellectuelle at Keter SAS Paris, France. Previously, she worked in the law departments at the U.S. Patent and Trademark Office, Warner Bros. Studios, Madison Media Group and IKON (now Ricoh Corporation). She is an Athletic Hall of Fame inductee and captained several soccer teams including the Hoya Lawyas while attending Georgetown University Law. Prior to law school she worked for the U.S. Congress as Press Secretary and Communications Director.

Victoria and her husband are active fundraisers and volunteers in their community and schools.

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