Megan

 

Before June 24th, 2018, I was a fairly normal person; a wife, a mom trying to keep up with two toddlers, and on an awesome career path. The next, I was someone with Neurofibromatosis II; I had multiple meningiomas, an acoustic schwannoma in my left ear, and some ependymomas within my spinal cord; 23 tumors total. I made several attempts to maintain “normalcy” upon being diagnosed; I tried medications, had two craniotomies, met with specialists, and more. What I realized is that there is no “normal” with NF2. There is no cure, and not a lot of awareness. But, there is a lot of hope! Hope is what keeps me going. It gets me through every day!

Here is my blog, that describe my NF2 journey:

https://craniotomyme.blog

Translate »
search previous next tag category expand menu location phone mail time cart zoom edit close