Our Memberships
One Nucleus is partnering with us for the Findacure mentor program, find out about them here
https://onenucleus.com/blog/my-nf2-nf2-biosolutions-uk
Genetic Alliance
Gene People
Brain Tumour Research
https://www.braintumourresearch.org/
Findacure
Proud members of the mentoring program 2021/22
https://www.findacure.org.uk/patient-group-mentoring-programme-2021-22/
The Neurological Alliance
British Neuro-Ongology Society
Our Charity Partners
Cladceil Ltd have chosen us as charity partners. This is a charity close to their hearts, as the wife and youngest son of the MD Pete Ward, both suffer from this rare genetic disorder, that affects 1 in 35,000 people.
EAST MIDLANDS LEADING CLADDING AND ROOFING CONTRACTOR
COMMERCIAL AND INDUSTRIAL
You can find out more information about them from these links
https://www.linkedin.com/company/cladceil-limited/
We are delighted to announce a new charity partner Bytes. This is in support of their Employee, Olivia Goddard, our Youth Ambassador
You can find them on LinkedIn or X (Twitter) and view their website here:
https://www.bytes.co.uk/
‘Bytes is a leading provider of world-class IT solutions & Services. We ensure businesses achieve maximum IT efficiency and security.’
‘Bytes is a big business. But we also have a big heart. We believe in giving back to our community. Our staff regularly participate in events or volunteer for charity. We’ve also contributed to many good causes locally.
Another way we give back is by reducing our environmental impact. We recognise that our operations could result in waste, energy consumption and emissions. To combat this, we have strong sustainability policies in place and commit to cutting our carbon footprint wherever possible.
Our purpose as a Bytes community is to grow great people, to deliver amazing things
Thankyou to the Bytes team for joining us in the fight against NF2 & supporting your employee Olivia.
If you know a company or would like to support an NF2 employee with fundraising or charity nominations, please get in touch.
If you are interested in becoming a charity partner or would like to make us your charity of the year then please get in touch with Jo at joanne@nf2biosolutions.org or our CEO Clare Goddard at clare@nf2biosolutions.org
Support
Can You Hear Us (a social group specializing in gatherings and meetings for those affected by NF2 and their YouTube page has a variety of podcasts regarding lived NF2 experiences): https://www.facebook.com/canyouhearus
NF2 UK Network (this group is for Patients, family, friends and carers, for UK only): https://www.facebook.com/groups/2069294610016554
NF2 UK Patient network (this group is for NF2 Patients ONLY for UK only): https://www.facebook.com/groups/1852464025050935
Facial Palsy: https://www.facebook.com/facialpalsyuk
Nerve Tumours UK Community group: https://www.facebook.com/groups/NerveTumoursUKcommunity/?ref=pages_profile_groups_tab&source_id=193019234077384
Nerve Tumours UK Teens group: https://www.facebook.com/groups/NerveTumoursUKteens/?ref=pages_profile_groups_tab&source_id=193019234077384
Mental Health: https://www.nhs.uk/every-mind-matters/
Sudden hearing Loss support: https://suddenhearingloss.support/
International Facebook group (this is an international NF2 group ifor Patients, family, friends and carers): https://www.facebook.com/groups/295400233813076
International Facebook just for NF2 people: https://www.facebook.com/groups/402786863127334
NF2 parent support group: https://www.facebook.com/groups/769572016443579
Rareminds (Mental Health for the Rare disease community) Rareminds | Mental Health Services for the Rare Disease Community
Tinnitus UK (Help and support with Tinnitus) Home – Tinnitus UK
NF Young Adults group (on facebook – young adults aged over 18) https://www.facebook.com/groups/980990142591570/