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NF2 Research Initiative accelerating research into NF2 Tumours

On NF2 Awareness Day we announced our new research initiative.

NF2 BioSolutions UK & Europe together with NF2 BioSolutions are excited to announce a new transatlantic partnership with researchers at the newly opened Geoffrey Jefferson Brain Research Centre (GJBRC) to support research into the role of inflammation in NF2 tumour growth (Schwannomas and Meningiomas)

There is a real potential that this research will lead to new treatments for those affected by NF2 by repurposing existing anti-inflammatory & immune-modulating drugs.

The GJBRC is a partnership with the Northern Care Alliance NHS group (incorporating Manchester Cancer Research Centre, The Christie Foundation & the Royal Manchester Children’s Hospital) & the University of Manchester where the UKs National NF2 service is based.

The research led by Mr Omar Pathmanaban (Strategic Development lead, Neurosurgeon) and Dr Gareth Evans (World renowned NF2 expert and NF2 BioSolutions UK & Europe charity trustee), will be conducted by 2 PhD studentships funded by NF2 BioSolutions UK & Europe and the initiative will cost £200.000 which we will need to raise. We are absolutely delighted that we were approached by the team to accelerate this treatment and bring to fruition much needed NF2 research already taking place into the microenvironment surrounding Schwannoma and Meningioma NF2 tumours.

Please see the following press release for further information

https://www.ncaresearch.org.uk/news/charity-supports-research-incurable-genetic-condition/

Our donation campaign link is

https://uk.virginmoneygiving.com/fund/manchesterukresearchproject

Support

Can You Hear Us (a social group specializing in gatherings and meetings for those affected by NF2 and their youtube page has a variety of podcasts regarding lived NF2 experiences): https://www.facebook.com/canyouhearus

NF2 UK Network (this group is for Patients, family, friends and carers, for UK only): https://www.facebook.com/groups/2069294610016554

NF2 UK Patient network (this group is for NF2 Patients ONLY for UK only): https://www.facebook.com/groups/1852464025050935

Facial Palsy: https://www.facebook.com/facialpalsyuk

Nerve Tumours UK Community group: https://www.facebook.com/groups/NerveTumoursUKcommunity/?ref=pages_profile_groups_tab&source_id=193019234077384

Nerve Tumours UK Teens group: https://www.facebook.com/groups/NerveTumoursUKteens/?ref=pages_profile_groups_tab&source_id=193019234077384

Mental Health: https://www.nhs.uk/every-mind-matters/

Sudden hearing Loss support: https://suddenhearingloss.support/

International Facebook group (this is an international NF2 group ifor Patients, family, friends and carers): https://www.facebook.com/groups/295400233813076

International Facebook just for NF2 people: https://www.facebook.com/groups/402786863127334

NF2 parent support group: https://www.facebook.com/groups/769572016443579

NF2 BioSolutions UK & Europe | About Us | Events and Fundraising | Stories

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