My name is Robby Mogan. I was diagnosed with NF2 when I was 12 years old and have undergone seven brain surgeries and one radiation since The age of eight. I am mostly blind and deaf but I have never let this disorder stop me from doing anything I wanted. I could not be more excited about the prospect of gene therapy for NF2. I am happy to be the Tennessee ambassador for NF2 Bio Solutions.
contact me at: firstname.lastname@example.org