30762602_1714511075280954_3860868027905998848_nMy name is Robby Mogan. I was diagnosed with NF2 when I was 12 years old and have undergone seven brain surgeries and one radiation since The age of eight. I am mostly blind and deaf but I have never let this disorder stop me from doing anything I wanted. I could not be more excited about the prospect of gene therapy for NF2. I am happy to be the Tennessee ambassador for NF2 Bio Solutions.

contact me at: robert@nf2biosolutions.org

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