Greetings from Cleveland, Ohio!

My name is Robyn Gelwasser.  email: rgelwasser@gmail.com

My son Seth has NF2. He has had numerous surgeries unnamed-16for a retinal tumor and spinal tumors. Seth began losing his hearing in 2015 and has been on Avastin since that time. As a parent wanting a cure for my son, I can no longer sit back and wait. Gene therapy is the answer to curing NF2. This is why I’ve decided to get involved and support NF2 BioSolutions. I look forward to working with other families affected by NF2 so we can educate, spread awareness, and fundraise for research and a cure.

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