Hello New York!!!
My name is Chantelle Nobis. I live in upstate New York with my husband and 3 children. My husband Pete (diagnosed in 2008) and daughter, Amelia (diagnosed in 2015) have NF2. My husband has a very mild case of NF2 (vestibular Shwanommas) and my daughter has what seems a very rare, more unpredictable case (golf ball sized malignant brain tumor meningioma (removed 2015), spinal tumors, cataract, cafe au lait, no vestibular shwanommas, etc.) Since their diagnosis with NF2, I have made it my mission to find others going through the same disorder, and fight for a cure. I truly believe that gene therapy is the answer to curing NF2, she is the reason I have decided to join and support NF2 BioSolutions.
I look forward to meeting and working with other families affected by NF2, so we can educate, spread awareness, and fundraise for research and a cure. “Alone we can do so little. Together we can do so much.”
Please contact me today at Chantelle@NF2biosolutions.org