Steevy Yarborough

Hi! My name is Steevy Yarborough and I live in Northern Nevada with my fiancé and our two wonderful kids. My son was diagnosed with NF2 in the summer of 2022, a few months after he had surgery to remove a brain tumor, when he was only 5 years old. Since then, we have discovered that there are 10 other tumors throughout his brain and his spine. When we received the news of his diagnosis, I began researching and found that, although this condition can cause devastating consequences, there are very few reliable treatments. I also soon discovered that, unfortunately, fundraising for rare disease research predominantly falls on the patients and their families. I then knew that I had to do something to ensure that my son will have a bright, happy future and a long, beautiful life. That’s when I became involved with NF2Biosolutions! A future in which my son faces a lifetime of tumors, surgeries, and loss of his capabilities is not going to happen on my watch! I am beyond excited to be a part of the movement to help find better treatments, with the goal of a cure, for my sweet boy and other wonderful people in his situation. If you live in Nevada and would like to help with fundraising, donations, or would like to help spread the word, please don’t hesitate to contact me! I am excited to end NF2 with you!


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