Amy Meyer Williams
Hi my name is Amy and my son Parker was diagnosed in 2018 at the age of 19. He is the first in our family to have this diagnosis. You can only imagine our shock and disbelief when we learned of this NF2 diagnosis.
We currently are seen by his team of Dr’s every 6 months for repeat brain and yearly Spine MRI’s. He has had gamma knife radiation to his right sided tumor in August of 2018 and started Avastin in April in 2019. Currently there is no cure. I want to help change this.
I believe whole heartedly that gene therapy replacement can be the cure for NF2 and believe that NF2 Biosolutions will find the way to do this. I am honored to take on this role of KY Ambassador for NF2biosolutions to help educate , spread awareness, raise funds and to hopefully create a network of support for each other. Let’s help end NF2 together. I look forward to hearing from you. 🧬