My name is Natalie Schneider and my son Markus has NF2.
Nf2 is a scary rollercoaster we are always waiting for the next drop. Markus has had 10 MRI’s at this point and will go at least yearly, until we need surgery or radiation or chemotherapy. These all have risks, that is why gene therapy is our best option.
We want to help raise money and awareness for this disorder. We do not have any longer to keep waiting for tumors to grow. Growth can mean loss of vital body functions. A child with low vision losing more functions scares me as a parent immensely. I hope and pray for a cure, not just temporary medical treatments that may or may not last very long.
To read more on the journey of Markus.
Join me to fight this disease, contact me at Natalie_schneider@nf2biosolutions.org