California (South)

IMG_1878.jpegHi, my name is Jodi Berlin and I will be one of the NBS Ambassadors for Southern California.  I have chosen to be of such service because NF2 needs more awareness to spark new and continued interest in finding a cure. Gene therapy holds promise and gives cautious optimism to such a goal. I inherited NF2 from my mom as did two of my three brothers. I feel a duty to keep fighting for a cure in their honor, as they were not so fortunate. At age 50, I am ready to get the show on the road and to make things happen.  You can read more about my NF2 journey here.

Please contact me at

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