I am the NF2 BioSolutions Abassador in Arkansas, and I was diagnosed with NF2 in 1999 at 5 years old. I am the only person in my whole family with this condition, but everyone has been extremely supportive and have always been involved in my medical journey.
I have three kids who are 7, 3, and 2 years old, the older two do not have NF2 and my youngest has not been tested yet! With symptoms and signs of NF2 displaying at just 14 years old, I have lost a lot of mobility and functions. Thankfully though I live in a small community and I have been supported by just about everyone around. I want my kids to see that I have never given up the fight, and I want to give hope to future generations by helping to raise funds to advance research for a cure or NF2. I am extremely excited and very hopeful that NF2 BioSolutions can, and will give us a cure! Please don’t hesitate to reach out to me to join me in this fight, you can reach me via email and phone- email@example.com or call/text 1-870-814-5971