My name is Lorena and I am 20 years old. A few months ago I was diagnosed with NF2. I have always had hearing problems, but it hasn’t changed since last year. I have a loud tinnitus that accompanies me day and night. My spine schwannomas are still small but in the future they will grow if I don’t get a suitable cure. NF2 is currently incurable, many don’t know what it does to you. This disease is unpredictable, it can do anything with you. We urgently need a cure, together we can fight this disease!
If you have any questions, please feel free to contact me.
Lorena@nf2biosolutions.org Phone: +41 76 564 74 85