Hello, My daughter Jessica has NF2. It took several years to diagnose Jessica correctly but with the advances of genetic testing and now gene therapy we are starting to accelerate diagnosis and therapy for such rare diseases. I also support the work of the Tumour Foundation of BC and their vision to bring a NF clinic to BC. I am very excited to be apart of the NF2 BioSolutions community and passionate to help educate, increase awareness and raise essential funds for research to ultimately cure NF2. Please contact me with any questions, suggestions or help with fundraising events. My email address is lisacard1@hotmail.com or call me at +1 604-499-9027 We need you support so let’s fight together to cure NF2!
Canada (West coast, Vancouver). Email: Lisa Lewis