Your Local Ambassadors

”Keep pushing against the current, keep making noise, keep advocating. It will not be in vain. NF2 will come to an end. It’s just a matter of time and consistent, collective effort.”
– NF2 fighter Nissa Marie Novas from Maryland, USA

Here you will find a contact person in your region, do not hesitate to contact us if you want to volunteer, we have so much work to do. If you wish to get involved and become an ambassador or support the current ambassador in your region, here are some details on the ambassador role.

Argentina

Georgina Di Gennaro I’m Georgina Di Gennaro from Argentina. My 11-year-old son, Ignacio, was diagnosed with NF2 last August. He ...

Australian Team

Tamara Wauchope I am located in Australia and represent NF2 BioSolutions. My daughter was diagnosed with NF2 at age 11; ...

Austria

Mein Name ist Dagmar Exl-Biedermann. Ich wohne mit meinem Mann und meiner Tochter in Wien. Ich bekam 2012 im Alter ...

Brazil NBS Team

 Lidia Jagnow Guerra Olá! Me chamo Lídia. Tenho 21 anos e fui diagnosticada com NF2 aos 17. Desde então já ...

Canada NBS Team

Lisa Lewis.  Hello, My daughter Jessica has NF2. It took several years to diagnose Jessica correctly but with the advances ...

China

Please contact Yuna and email inbox  Yuna@nf2biosolutions.org ...

Egypt

I am Adham Elkhouly, the Egypt Ambassador for NF2 BioSolutions. I live in Cairo with my father, mother, and two ...

France NBS Team

Sébastien Chartier Je suis honoré d’être l’ambassadeur de NF2 BioSolutions pour les pays francophones. Je suis le papa de Mathis, ...

Germany Team

Ambassador: Annika Heiligenhaus annika@nf2biosolutions.org Team Members: Vanessa Gurguta ...

Hard of hearing/Deaf Community Ambassador

My name is Erika Kamen and I’m very excited to be the NF2 BioSolutions ambassador to the hard of hearing/deaf ...

India

Pooja Khelani I am fighting to raise awareness about NF2 to common people because I want them understand what NF2 ...

Israel

  Gil Atlan  .אני אשמח לדבר איתך ולהסביר על האירגון הזה .  ביחד אנחנו יכולים להריץ את המחקרים בתחום הגנטיקה ...

Italy NBS Team

Luca Millefanti .  Sono orgoglioso di rappresentare NF2 Biosolutions in Italia. È il futuro per chi soffre di NF2. Non esitare ...

Japan Team

Eiichi Tanabe Hello, I am Eiichi Tanabe, serving as an ambassador for NF2BioSolutions in Japan. I reside in Yokohama City ...

Malaysia NBS Team

Yi Liang Tan .  I am honored to represent NF2 BioSolutions in Malaysia. Feel free to contact me any time ...

Norway NBS Team

Rigmor Eriksen Jeg er mor til Joakim, som er 30 år og som har NF 2. Han ble diagnotisert med ...

Philippines NBS Team

Krizelle Alcantara . I am very happy to represent NF2 BioSolutions in the Philippines. Feel free to contact me any ...

Poland NBS Team

Cześć, nazywam się Anna. Jestem z Polski. Jestem mamą dwójki dzieci, ale tylko synek choruje tylko na Nf2. Choroba pojawiła ...

Portugal NBS Team

Luisa Adelaide Abreu dos Santos, M.D,  and. Marta Amorim, Geneticist Chamo- me Luísa Abreu Santos, tenho 38 anos , tenho ...

South Africa NBS Team

Christine Pelzer. I am very happy to represent NF2 BioSolutions in  South-Africa. Feel free to contact me any time for ...

Spain

David Martí Pérez **Spanish version below My name is David. My twin sister María, was diagnosed with NF2 two years ...

Switzerland

Lorena Curcio My name is Lorena and I am 20 years old. A few months ago I was diagnosed with ...

UK NBS Team

  Clare Goddard and Ebony Jade Barber I am very proud to represent NF2 BioSolutions in the UK. It is ...

USA NBS Team

 Here are all our ambassadors in USA. We are still looking for more ambassadors ...
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