NF Community Day 9th Oct 2022

We have been very busy organising the NF Community Day in Manchester with other NF organisations and in particular NF Patients United

Registration for the NF Community Day is now open from Sept 20th 2022!

You MUST register & sign up via this link:


There is a maximum of 100 registration places available.

Location: Mercure Manchester Piccadilly Hotel,

£5 Per person attending

There will be presentations by experts about NF, and presentations of nominated NF Projects.

There is the opportunity to watch online, if virtual is preferred.


Video by NF patients:

A part of the program will be to honour Prof. Gareth Evans and Prof. Rosalie Ferner for their lifetime achievements for NF patients in the UK.

We want to surprise Prof. Gareth Evans / Prof. Rosalie Ferner with a video-collage of NF patients. Please help us by providing a video, where you answer the following questions (max. 30 seconds per question):

  • Describe Gareth Evans / Roslie Ferner in one word!
  • What is the best character trait of Gareth Evans / Roslie Ferner?
  • How did he/she change your life?
  • What do you want to say to him/ her?

Or simply say a few words of thanks, entirely up to you!


ALL videos needed by Sept 25th.

Please contact us, if you need more info. Please record the video horizontally and send it to


Let us know if you are sending a video as we will need to send you the consent form.

PLEASE NOTE: @nf_patients is the official sponsor of the NF Scientific Meeting in Manchester.

We hope to see you at the Patients day on Sunday when we will be hearing research updates from Vice President Gilles Atlan and UK Lead Clare Goddard.


This blog has been created as a way to share stories, ideas, positivity and even sprinkle in some science. Everyone is welcome here and warmly encouraged to join us in contributing to our community through this blog. If you would like to add anything (anything at all!) then please contact myself, Grace Gregory, at and we can pop it up on our blog. Watch this space and please join in helping us all connect and share with one another!

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