NF Young Adult International Summit 2022


The NF Young Adults Summit this year is taking place LIVE from New York on 27th and 28th August 2022, put the date in your diary if you are aged between 18 and 30 and want to join in.

Organised by Littlest Tumour foundation, Childhood Tumour Trust, NF2 BioSolutions UK & NF Patients United

If you would like to register for this event please do so here

NF2 BioSolutions UK CEO Clare will be speaking, also Olivia our new Youth Ambassador will be speaking about mental health and our trustree Prof. Gareth Evans will be speaking and giving an update on things.

This is a meeting of researchers, consultants and NF advocates that want to teach YOU how to manage your NF and plan for the future.

You can join the summit in person in New York (your own expense) or join virtually. it is open to those with NF (aged 18 to 30), their family members  and carers.

We hope to see you there!

More details coming soon!

For more info please email us at


This blog has been created as a way to share stories, ideas, positivity and even sprinkle in some science. Everyone is welcome here and warmly encouraged to join us in contributing to our community through this blog. If you would like to add anything (anything at all!) then please contact myself, Grace Gregory, at and we can pop it up on our blog. Watch this space and please join in helping us all connect and share with one another!

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